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Ukraine War: 'I think of my wheelchair more than myself now'

When escaping Ukraine, Tanya took her tyre pump instead of her favourite dress.

Wheelchair user Tanya fled Ukraine for Poland, worried she couldn't evacuate from her fourth floor flat in an emergency.

And an autistic journalist left Moscow when her article denouncing the war on Ukraine went viral, afraid she'd be detained by the Russian government.

The two disabled women tell their stories to Ellis Palmer and Emma Tracey.

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18 minutes

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Ìý

18th March 2022

bbc.co.uk/ouch/podcast

Ukraine War

Presented by Emma Tracey

Emma-Ìý Hello, and thank you for pressing play on the 91Èȱ¬ Ouch podcast. Actually this is the very last episode from Ouch. We’ll be revealing an exciting new look shortly, and there will be more about that later in this episode. ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý Far more important matters are on our minds today though. We’ll be speaking to two disabled women who fled their homes as a result of the war on Ukraine.ÌýÌý ÌýÌý

music-ÌýÌý Featuring upcoming clips. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý I’m Emma Tracey. And just to say that the two stories you’re going to hear in this episode were recorded much earlier in the invasion. Since then we’ve seen so much devastation and the fear and struggle of those still inside the country. Later you’ll hear me speak to an autistic Russian journalist who felt compelled to leave her home in Moscow after an article she wrote condemning the Ukraine invasion received more attention than she was expecting. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý First though my colleague, Ellis Palmer, talks to Tanya Herasymova. Tanya is a wheelchair user. She’s also working for a Ukrainian disabled person’s organisation, Fight For Our Right. Tanya fled to Poland at the start of the invasion, and she begins by describing that journey. ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Tanya-Ìý It was okay, but when it’s a lot of people, when people are in a panic it was really hard emotional. ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý How did you get from Lviv to safety in Poland?Ìý ÌýÌý

Tanya-Ìý We don’t know what to expect on our way. We thought that we will need to walk to the border, like 8kms, and my mum was shocked. She just said to me no, you should go alone, I can do it. But thanks to people who took us to the minibus and arrived us almost to the border we didn’t need to go so long way. We only had walk to the border 50m. When I crossed the border the Polish people met us and I really wanted to cry because they were so kind. They provided all the help I needed. They helped me to catch the right bus and to go the place where I should go. It was like a miracle. And yes, we also had some stuff with us, some backpacks, but we were happy because it was a long way, we go like 22 hours. ÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý You’ve got these bags, how were you able to fit everything that you need on the back of your wheelchair?ÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Tanya-Ìý Too many bags. It’s four bags. And you can’t imagine how we took it. I had a backpack on the back of my wheelchair. Also I had a backpack on my back. My mum also had a backpack. And I also had a big bag on my knees. ÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý Because I’ve never been in your situation I don’t know, but when you are seeking to flee in refuge I’m guessing you’ve got lots of different types of mobility equipment, things that you need, things that you and your mother depend on every day to be able to have the lives you have. How do you manage which ones to take and which ones to leave behind in Kamianske?ÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Tanya-Ìý I just know that I need to take my documents, I need to take some money and the basic stuff which I use every day. As a woman first what I took, this was my favourite dress. But then I put it out because I just thought that I will need comfortable clothes. And I just forgot the pump for the wheels. A couple of days before the invasion I realised that my wheels were a little bit broken. When I was on my way I was just thinking about my wheelchair, this is the only thing which will help me to move, and I’m caring about my wheelchair now more than about myself. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý Did they have cars that you get your chair into the back of?ÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Tanya-Ìý In an accessible bus. And then some volunteers met me and took me by car to the place where I had accommodation. It was so great because I was so tired. I just wanted to go to this place where I can sleep, where I can take some hot tea, because it was so cold.ÌýÌýÌýÌý ÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý How has your experience in Poland been so far, Tanya? Have people treated you well? Have things been accessible?ÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Tanya-Ìý My experience is quite positive. I so appreciate all the help which the Polish people provide to me and my mum. Poland is a little bit more accessible than Ukraine. I had an accessible accommodation and there is more accessible transportation and the possibility to walk by streets by myself. At my home town I live on the fourth floor and I can’t go out without help. ÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý So, you’ve got friends, you’ve got family back in Kamianske city. You must be really concerned for them? ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Tanya-Ìý I am really concerned about my relatives, and also they are concerned about me. We’re trying to understand each other and I’m trying to understand their decision to stay in Ukraine. And they’re trying to respect my decision to leave. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý What is their decision to stay in Ukraine? Why have they decided to do that?ÌýÌýÌýÌýÌý ÌýÌý

Tanya- Because that’s their home. They have no place to go. And they are feeling better when they are in their own home, in their own bed. I respect this decision. I just know that I’m not able to stay in Ukraine because I need a lot of help.ÌýÌýÌýÌýÌýÌý ÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý If you’d stayed there you must have been really concerned about how you were going to evacuate?ÌýÌýÌýÌý ÌýÌý

Tanya-Ìý There was the biggest issue. And on February 24th I went to my aunt, living in a residential house, because I was really scared to stay on the fourth floor. I know that I need a lot of time to go down, and if there is some emergency situation I will stay at home on the fourth floor, it will be really, really dangerous for me.ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý In terms of the disabled people who are still in Ukraine, who haven’t taken refuge, how are they managing the situation? You see non-disabled people being able to go into bomb shelters, being able to go into metro stations; are those options accessible and available for disabled people?ÌýÌýÌýÌý ÌýÌý

Tanya-Ìý They’re staying in their homes. And now the situation became worse because of lack of some humanitarian stuff. And we also received some request for disability equipment, like wheelchairs etc. because there are not some medical shops now. People not able to go to bomb shelters this is now a problem with food, with water. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Ellis-ÌýÌýÌýÌýÌýÌý Your organisation, Fight For Our Right is doing a lot of work for disabled Ukrainians. If people are listening to this and may want to support disabled Ukrainians how can they do that?ÌýÌýÌýÌýÌý ÌýÌý

Tanya-Ìý We have hundreds of campaigns on Go Fund Me and we weren’t expecting that people from the whole world will be so kind and will so much support us, and this is incredible. Yes, we’re trying to help people with disabilities in Ukraine now to pay for transportation, to pay for medical equipment etc. all what they need. ÌýÌýÌý ÌýÌýÌý

Emma-Ìý Thanks to Tanya Herasymova for telling her story, and to Ellis Palmer for bringing it to us. Ellis is a producer on NewsHour for the 91Èȱ¬ World Service. Now for a very, very different perspective from the capital of Russia, where awareness of events in Ukraine is reportedly very low due to media crackdowns and a regime who shows their citizens something very different to what we see on our TV screens. ÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý [Name] is an autistic Russian journalist, and until recently she lived in Moscow. But she felt compelled to leave after an article she wrote for media outlet, [Organisation], condemning the war on Ukraine became pretty popular, and she was afraid she’d be detained by the government. When I spoke to [Name] she told me that that fear, plus sanctions and crackdowns on social media, left her struggling to cope. Here’s [Name’s] story. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Guest-Ìý I started to fall apart I think on day three of the war. I couldn’t function. I just locked myself in a dark room where I was just crying and throwing up the entire day. I couldn’t speak. I went completely non-verbal. I was shaking. I was just a complete mess, to the point I think my partner just looked at me and said, okay, we have to move, we have to go. And then he went and he’s booked the flight tickets and sorted out our escape. ÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý What was the journey like for you? ÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Guest-Ìý We decided to go to [Country] but we had to go through [Country]. The flight was postponed by 30 hours because some planes were sanctioned and could no longer fly. The moment I saw how long the delay was I think I just started having a meltdown. And then we were able to walk out again across the border, back into Russia, and just go home. And we stayed there for the night, and then we could go back to the airport. I am so grateful they actually let us out. I cannot imagine staying in an airport for 30 hours. That’s just too loud, too intense for me. ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý I think we only managed to exhale in relief when we crossed the border in [Country]. That was fine. I thought [Country] was really welcoming and really nice and I really liked it there. however, we got to [City] in [Country] and then there was so much graffiti on the walls all over the city that say, Russians go back to your ugly country, Russians not welcome. And that’s just really heart-breaking because we did not choose this. I don’t know anyone who supports what’s happening. I didn’t expect it to be so hostile because I am half-[Nationality] and my experience with [Country] so far has been really wholesome. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý We went there because logistically it was the easiest option, because it was no longer possible to fly to Europe. And [Country] is the closest country. I didn’t want to fly somewhere that’s like six hours ahead or behind. ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý And why not?ÌýÌýÌý ÌýÌý

Guest-Ìý Well, mainly because I still have to communicate with my job and my family in Moscow time. And it’s comforting to stay somewhere that still feels relatively familiar. Most people in [Country] speak Russian. There are a lot of Russian and Belarussian and Ukrainian people in here, so it kind of feels like home, even though it’s not. ÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý What’s life been like over the last few days that you’ve been in [Country]?ÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Guest-Ìý It’s been quite intensive. I feel like we’re all at our limit. We’re all at capacity, just trying to take it one day at a time. Yesterday was actually the first day in two weeks that I didn’t cry. Seeing as the bar is so low it just felt like a massive achievement. ÌýÌý ÌýÌýÌý

Emma-Ìý Yes. Where have you been staying since you got to [Country]? At hostels?ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Guest-Ìý Yes, we’ve been staying at a couple of different hostels and hotels. The one we’re at now is quite nice because it’s quite remote and quiet. The first one was not very comfortable. It was really loud, really cold, and I think I woke up in the morning and I just started having a mental, like a meltdown because it was too much. ÌýÌý ÌýÌýÌý

Emma-Ìý Have you found new ways to self-regulate? Have you found new ways of accommodating your needs? How has it worked?ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

GUEST- I’m still trying to find such ways. I think I’ve been feeling that I honestly just don’t have time, and I cannot afford to fall apart. But the past few days I’ve just basically been staying inside and just trying to calm down and not overstimulate myself. Never being alone anymore and not having any stability is hard. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý Will you ever go back to Russia, do you think? ÌýÌý ÌýÌýÌý

Guest-Ìý I hope so. Probably not for a long time. It’s a really strange feeling to realise that you’re basically a criminal in your own home, somewhere that’s supposed to protect you and make you feel safe. Because by the new Russian laws if you speak out against what’s happening in Ukraine, if you don’t use the correct terminology, if you say something that contradicts the position of the State you can go to jail for up to 15 years. So, I did not want to risk it. I think as an autistic person I would hate being in jail, even though it’s stability and it’s quite a predictable environment; I don’t think it’s very friendly. So, I probably will not go back any time soon. Ìý ÌýÌýÌý

Emma-Ìý I guess we can’t talk about long-term future, but even the next couple of months what are your plans?ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌý

Guest-Ìý Yes, you’re so right, it’s impossible to even think about long-term future at this point. I think our goal right now is to find a permanent place to live. And probably also look for new jobs because I really struggle to see how it’s possible to work in a Russian company in media. ÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý It sounds very uncertain. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Guest-Ìý Yeah. But, I don’t know, I’ve met so many wonderful people. Honestly it’s not all so bad. For example, there is a family of Ukrainian refugees living next door in our hostel, and when I first met them I was so confused. I felt so guilty, I just wanted to cry and I wanted to apologise to them on behalf of my country. But they were so wonderful and so understanding. The mother she made us tea and sandwiches and we just sat for an hour and talked about how much this sucks. They told me their story about how they barely survived and how they escaped. And now we just keep in touch and trying to help each other figure out to live in [Country], how to find accommodation, how to open a bank account; just exchanging information. So, in a way I think this crisis is bringing a lot of people together. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

Emma-Ìý Thanks to [Name] and to Tanya for sharing their stories with us. We’re interested to hear from you if you’re disabled or an ally to disabled people and are affected by the war on Ukraine. Email accessall@bbc.co.uk to get in touch. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý A surprise new email address for you there. Access All is the name of a new weekly disability news podcast, presented by Nicky Fox. And I’ll be back in your ears then too, reporting on the disability stories that matter to you. The new pod launches at the end of April. We’ll be a bit quiet while we get it ready, but you don’t need to do anything. We’ll be back on this very feed to tell you more soon.ÌýÌýÌýÌýÌý ÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý I’m Emma Tracey, and it just remains for me to say thank you for being awesome and for sticking with the award winning Ouch podcast through 16 years of various changes. We appreciate it a lot. ÌýÌýÌýÌýÌýÌýÌýÌýÌý ÌýÌýÌý

ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý [Music] Stay subscribed to this feed and, well, talk soon. ÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌýÌý

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