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Cure Parkinson's Trust

Gavin Hastings presents an appeal on behalf of the Cure Parkinson's Trust, the only UK charity solely dedicated to finding a cure for Parkinson's disease.

Gavin Hastings presents an appeal on behalf of the Cure Parkinson's Trust, the only charity in the UK solely dedicated to finding a cure for Parkinson's disease. Founded by people living with Parkinson's, the charity funds clinical trials of potential new treatments to slow, stop and reverse the disease.

Gavin's wife Diane was diagnosed with Parkinson's in 2003, aged just 39. Since then, the family have thrown themselves into fundraising activities. Every penny donated to the cause goes towards research into new treatments with the potential to cure this devastating and all-consuming disease, which can cause muscular pain, stiffness, slowness of movement and balance problems.

The charity's research work is an inspiration to people like David Sangster, who was diagnosed six years ago, when he was 29. Like the founders of the Cure Parkinson's Trust, he feels a sense of urgency about funding more research to try and find a cure. 'We use the term patient to describe people with Parkinson's and that's indeed what we're not. We're not patient! We need better treatments now! Better support to find a cure. Without the money to fund that, it's never going to happen'.

9 minutes

Last on

Wed 22 Mar 2017 13:00

The Cure Parkinson's Trust

The Cure Parkinson's Trust

The Cure Parkinson’s Trust (CPT) is the only charity in the UK solely dedicated to finding a cure for Parkinson’s.

Parkinson’s is a progressive and all-consuming neurological disorder characterised by tremors, stiffness, slowness of movement and balance problems. Other symptoms include mood changes, loss of sense of smell, pain and sleep disruption.

Parkinson's can affect everything in life that most people take for granted. It affects people physically, mentally, behaviourally, and emotionally. There is an urgent need to find new and more effective treatments and ultimately a cure.

Current treatments can only temporarily improve some of the symptoms, but to date, nothing has been found to stop the relentless and inevitable progression of the condition.

Set up in 2005 by four people living with the condition, CPT fund clinical trials of potential new treatments to slow, stop and reverse the disease, as well as pre-clinical research work to identify these new treatments.

The Cure Parkinson’s Trust firmly believe the only way to achieve their goal is by collaborating with scientists, clinicians and the industry and importantly, people living with Parkinson’s and their families, whose experiences define and shape the nature of the research CPT fund and support.  

Currently, more than 127,000 people are living with Parkinson’s in the UK and 10 million worldwide. The number of people of Parkinson’s is forecast to double by the year 2030 and about 1 in 20 people diagnosed with Parkinson’s are under the age of 40.

CPT urgently needs funds to accelerate its important research and continue the progress towards a cure.

David

David

Married with two young children and based in Greater Manchester, David was diagnosed with Parkinson’s over five years ago when he was just 29 years-old. 

‘I have been through many of the emotions that any person given a life-changing diagnosis could possibly experience.’ says David.

‘Five years in, controlling the symptoms of the disease has become less predictable day-to-day and this irregularity in symptom control has had a big impact on my family life, as a husband and father, and on my job.’

Determined to support others facing a diagnosis of Parkinson’s, David founded and manages a network group which helps connect people of a similar age living with the disease.  

‘Knowing The Cure Parkinson’s Trust are funding ground-breaking research focused on a cure, has had a really positive impact on me and my sense of hope for the future.’ 

Rachel

Rachel

Rachel Gibson was diagnosed with Parkinson’s aged 38 and has been living with the disease for nine years.

Rachel first noticed a stiffness and slowness in her movement. Keen on fitness, she became aware when running that her ‘leg would misbehave’.

‘I had no idea that it could be Parkinson’s,’ Rachel remembers, ‘but the neurologist knew as soon as he saw me.’

‘As a nurse, my medical background meant I understood what the inevitable progression of the disease meant for my future.’

‘Now at my age, what I really want more than anything else is a cure for Parkinson’s. My children are still quite young and they want a Mum who is Parkinson’s free. This is why I support the important work of The Cure Parkinson’s Trust – their whole focus is funding research to find a cure.’

Credits

Role Contributor
Presenter Gavin Hastings
Series Producer Fiona Cushley
Assistant Producer Nick Shaw
Executive Producer Ruth Shurman

Broadcasts

  • Sun 19 Mar 2017 15:45
  • Wed 22 Mar 2017 13:00