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Photo – Children with nystagmus access information and support

I learnt more about nystagmus in the 3 minute broadcast than throughout the rest of my life".

Following the Nystagmus Network’s Radio 4 appeal, the charity received universally positive feedback on the clarity of the broadcast’s message. One listener, in his 70s, said he had learnt more about nystagmus in the 3 minute broadcast than throughout the rest of his life. We have been contacted by several individuals saying that they were totally unaware of the condition previously or that Richard himself lived with nystagmus. We also enjoyed unprecedented social media engagement. With transmission following closely after Nystagmus Awareness Day on 20 June, the broadcast raised awareness of the condition to new heights.

In 2020, when most fundraising had ceased and people with nystagmus were struggling with home-schooling, social distancing, shopping, lack of hospital appointments and isolation, the appeal has been a lifeline to the charity and the nystagmus community.

The total of donations has reached £9,230. This means that, as eye clinics and high street opticians began to reopen, patients and their families are finding information about nystagmus. Clinic staff are aware of their needs, thanks to training the charity is now able to provide. In September, when children returned to school, parents and school staff were able to enjoy the benefit of accurate, up to date information about education support to ensure that all young people with nystagmus attain their academic potential.

We are indebted to our wonderful presenter, Richard, for kindly agreeing to voice our appeal and share his own reflections on living with nystagmus. We often tell young children that, with the right support, they can achieve anything, despite their disability. They can even become a famous TV presenter if they work very, very hard. Thank you, Richard, for the inspiration.

You can find out more about our charity .